Stephanie De Los Santos, a Camp Resource Development VISTA with the Epilepsy Foundation of Texas (EFTX), wrote and submitted 6 grants asking for a total of $72,600 in July. Two of those grants, totaling $13,600 from the CH Foundation and CNS Pantex were approved. These grants will fund programs to send children with epilepsy to summer camp, provide free medication and diagnostic testing to adults, and education programs for school nurses and personnel to ensure safe environments for children attending school with epilepsy.
The smell of bug spray and the sound of children laughing indicated summer camp had begun. The Epilepsy Foundation of Texas hosts three camps with over 300 kids in attendances. Community Outreach VISTA, Rashika Smith was able to assist with Kamp Kaleidoscope located in Anna Texas. She had an amazing experience witnessing the results of her advocating, fundraising, and pushing for these past couple months. She learned from the children how they cope with their condition and the saw the bravery demonstrated as they continued to participate in the camp activities. Rashika used the information the campers shared with her when she attended a school nursing conference. She spoke to over 100 school nurses and educated them on how children with epilepsy felt during a seizure and what helped them cope better after having one.
Stephanie Del Los Santos is serving at the Epilepsy Foundation of Texas in the Houston office as the Camp and Resource Development VISTA. Stephanie keeps everyone informed of the Foundation’s activities and events through the monthly CEO Update. The CEO Update reaches over 7,000 people and includes board members, major donors, and involved participants. The Update allows the community to stay informed about the Foundation’s activities and learn about the people they serve.
When running a race and you see the finish line, people have a way of pushing harder and finishing as strong as they can. The month of June was no different for the Epilepsy Foundation of Texas. This was the month to make every fundraiser and in-kind donation matter because it was the start of Camp! Epilepsy Foundation-Texas host three camps and send over 325 kids to camp for free. On average, the cost to send one kid to camp is $1,200. Community Outreach VISTA, Rashika Smith was responsible for obtaining in-kind donations of water and snacks for participants for two events which took place in west Texas. The Lubbock Landmark Lope, a 5k trail run at the Lubbock Lake Landmark and Sharon’s Ride. Walk. Run in Amarillo raised $22,876.57 which will support medical and educational service provided by the Epilepsy Foundation of Texas. The final June fundraiser brought the heat, sweat, and money. The Cornament was an entertaining and unique event featuring a cornhole tournament, side games, entertainment, beverages and food. Rashika obtained in-kind donations of gift cards worth over $1,040, to be used for prizes for participants. During the event a parent spoke about how the camp provided a place for their kid to be a kid and how no other camp was willing to give the child a chance to attend because of their medical condition. Over 100 people attended the Cornament and raised $29,412 which will send approximately 24 children to camp at no cost!
Rashika Smith is the Community Outreach VISTA serving at the Epilepsy Foundation Texas’ Dallas office. In May, she received the sad news that a five year old passed away in his sleep from epilepsy. Hearing about his death was hard and knowing he was just a child was even harder. Rashika met this child at Sharon’s Ride in Fort Worth. Sharon’s Ride is a fundraising and epilepsy awareness event. This was the first Epilepsy Foundation event the child and family attended and Rashika remembers seeing the child smiling and having fun. Rashika has learned first-hand that creating events is more than just making money. These events also help to make precious family memories. As a VISTA, Rashika’s work is behind the scenes where she creates positive impact and sometimes she does not get to see the results. The thought of the little boy gives her fuel to keep going and work even harder to raise money and awareness about epilepsy so one day another family does not wake up to their child not being able to say,” good morning”.
Stephanie De Los Santos, Camp and Resource Development VISTA serving with the Epilepsy Foundation Texas, began her year of service in March and dove right in to grant writing. Stephanie has been able to submit 3 grants for a potential outcome of $33,600. If awarded the funds will be used to send children with epilepsy to summer camp. The Epilepsy Foundation Texas camping programs provide children and youth with epilepsy a safe, structured, FUN and encouraging home away from home. In order to learn more about how epilepsy effects individuals and families, Stephanie interviewed a father and son. The son has a seizure disorder and the father was away at work while most of the testing/diagnosis process was ongoing. They told her about the fear, worry, and anxiety of having to go through the medical testing. They also told her about the relief of becoming involved with the epilepsy foundation and how the agency has helped them. At that moment, Stephanie felt like she was a part of something important.
Forget testing the water, VISTA Rashika Smith serving with the Epilepsy Foundation Texas, had to jump in fully clothed to make Sharon’s Ride a success. Sharon’s Ride is an educational and fundraising event to increase the community’s awareness of and support for individuals afflicted with epilepsy. Rashika began VISTA service at the end of March and thought she would be learning more about the foundation and plan for the even months ahead. That was not the case as the event was less than five weeks out and there was a lot to do. Rashika was tasked with contacting donors, recruiting volunteers and developing donor letters and volunteer job descriptions. She hit many dead-end walls but after receiving the first donation she gained the confidence she needed to keep moving forward. As a result, the event was a success we had over 20 volunteers, 100 participants, a variety of snacks, and the best part, Epilepsy Foundation Texas raised $53,000 to support children with epilepsy go to summer camp.
As a VISTA at Epilepsy Foundation Texas you will help end poverty by increasing awareness of epilepsy and engaging the community through the development of community events and fundraisers. Major activities will be centered on the development of Sharon’s Ride.Run.Walk for Epilepsy, a family oriented fund and awareness raising event. The VISTA will mobilize current volunteers and board members in the Fort Worth community and seek out new clients, families and local organizations for partnerships, coordinate peer-to-peer fundraising, expand media contacts, and develop a media kit for the Fort Worth Sharon’s Ride event. VISTAs serve their communities through indirect service. The programs developed by the VISTA will endure for years, however the VISTA member will have limited interaction with Epilepsy Foundation Texas’ clients and will be based in an office setting. Applicants should possess excellent written and oral communication skills, community organization and fundraising knowledge.
As a VISTA at Epilepsy Foundation Texas in Houston you will help families and individuals living with epilepsy receive excellent programs and services such as medical clinics and camp programs. Major activities include researching and writing grants benefitting camp programs and medical clinics. The VISTA will build on the success of camp and clinic programs to increase overall community outreach through the development of processes, presentation and training materials/manuals used for outreach and retention of donors, campers and volunteers, etc. VISTAs serve their communities through indirect service. The programs developed by the VISTA will endure for years, however the VISTA member will have limited interaction with Epilepsy Foundation Texas’ clients and will be based in an office setting. Applicants should possess excellent written and oral communication skills, community organization and grant writing skills.